Several decades in, I thought I had life figured out. Rheumatoid Arthritis has a way of screeeching perceptions to a halt, like a phonograph needle dragged across a vinyl record. A great master of wisdom (and tomfoolery), RA has taught me 5 things: Patience: The greatest lesson of Rheumatoid Arthritis is patience. You must be patient through the worst days, the worst hours, and tough … Continue reading RA: Master of Wisdom & Tomfoolery (#RABlog Week)
HOW DO I WORK THIS? Sage advice from The Talking Heads.
Looking back at old family photos is poignant for anyone, but all the more when your children are later stricken with chronic illness. Janis Joplin sums up the ragged emotions. Continue reading Feelin’ Near as Faded as my Genes
One September morn at 2 a.m., B crawled to our room in terrible pain. Her ankles and wrists were locked. Juvenile Arthritis diagnosis would take FOURTEEN YEARS. Continue reading Juvenile Arthritis: A Cautionary Diagnostic Tale of Rheumatology
Back in the mid-nineties everyone was watching Seinfeld. We caught up years later when it went to syndication. Hubby and I were too busy raising our three little kids and restoring a 1921 Bungalow (well, just keeping the doorknobs on most days). Our world changed when our seven year old daughter, B, awoke in the middle of the night with her wrists and ankles locked. … Continue reading An Advocate for One