Looking back at old family photos is poignant for anyone, but all the more when your children are later stricken with chronic illness. Janis Joplin sums up the ragged emotions. Continue reading Feelin’ Near as Faded as my Genes
Painsomnia woke me at 3:45, and at 6:30 I’m still awake. So I ask myself, WWJD? As in, What Would Jim Morrison Do? I’m pretty sure that beautiful boy, desert guru would treat pain as a free floating, mind-expanding experience. You know the day destroys the night Night divides the day Tried to run Tried to hide Break on through to the other … Continue reading Painsomnia – WWJD: What Would Jim Morrison Do?
One September morn at 2 a.m., B crawled to our room in terrible pain. Her ankles and wrists were locked. Juvenile Arthritis diagnosis would take FOURTEEN YEARS. Continue reading Juvenile Arthritis: A Cautionary Diagnostic Tale of Rheumatology
Back in the mid-nineties everyone was watching Seinfeld. We caught up years later when it went to syndication. Hubby and I were too busy raising our three little kids and restoring a 1921 Bungalow (well, just keeping the doorknobs on most days). Our world changed when our seven year old daughter, B, awoke in the middle of the night with her wrists and ankles locked. … Continue reading An Advocate for One